These organisations provide support to patients with a range of conditions linked to genomics, including resources and information that may be of interest.
SWAN UK (syndromes without a name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.
Rare Disease UK is the national campaign for people with rare diseases and all who support them. Rare Disease UK provides a united voice for the rare disease community by capturing the experiences of patients and families.
Genetic Alliance UK are the national charity working to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions. They are an alliance of over 200 patient organisations.
Macmillan Cancer Support is the UK’s leading source of cancer support, helping more and more people living with cancer, all with your help.