Our Patient and Community Forum plays an active role in supporting the work of the North East and Yorkshire Genomic Medicine Service. It ensures that the views of patients, the public, carers and families are at the heart of our work.

Read more about the forum’s work and goals, as well as current opportunities for patients and the public to get involved with genomic medicine, below.

Current opportunities – Genomics Education Programme Patient Survey

The Genomics Education Programme (GEP) has launched a new patient survey and are encouraging patients from across the UK with experience of genomic testing to take part.

They want to find out more about patients’ thoughts and experiences of the care and treatment they have received in the lead-up to genetic/genomic testing, during testing, and after receiving their results. The feedback will be used to improve the education, training, and support that GEP provide for healthcare professionals relating to genomics.

The survey should take no longer than 10 minutes to complete and will run until 31 January 2024. Patients are asked to reflect on any positive and negative experiences they have had and share the details in the comment boxes provided. All responses will be treated in the strictest confidence and will be anonymised before being published in any subsequent reports.

Click here to take part in the survey.

We are recruiting!

Forum Recruitment Pack

Expression of Interest form

 

The Patient and Community Forum is still recruiting to its membership. If you’re interested in joining us and helping shape the future of genomic medicine in our region, please:

Contact the Communications Team

The Genomic Revolution

Genomics is the future of healthcare. A future that is happening right now, and the NHS is leading the world in this space. By joining the North East & Yorkshire Genomic Medicine Service (NEY GMS) Patient & Community Forum you’ll get a chance to explore how genomics is transforming patient care and clinical services, and help improve health inequalities & cancer outcomes in the region today.

What’s it all about?

Made up of patients with lived experience in genomics or an interest in the field. Forum members act as a critical friend, ensuring that the patient and public voice is not only heard, but is influential in service developments and decision-making.

The Forum meets quarterly to offer its collective views and contribute to a range of agenda items. Involvement activities are very varied and may include:

  • Receiving presentations from professionals working in the field of genomics and giving feedback on newest developments and innovations
  • Reviewing patient information
  • Providing input through patient surveys
  • Making suggestions on how we can improve care pathways in hospitals or other care settings

 

Forum members are encouraged to help us set a meaningful agenda and explore areas of collaboration in everything we do.